Beating Hearts, Beating Records Seminar

Our aim is to answer your questions, educate, inform and inspire you with all that life after cardiac arrest has to offer!

The information below should give you a good idea of what we plan for the day, but please be aware it is subject to change.

Please make sure you take time to read the information below and print off a copy of our handy GWR Participant Checklist.

As well as the organised sessions you will find that meeting other people who have “been there” and “get it” is an invaluable experience and can really help in recovery.  Family and friends also need support and the event is an ideal opportunity to meet people who understand something about what those affected by a cardiac arrest are living with.

There will be plenty of opportunities to talk to other delegates during the day and we encourage you to engage with others.

If you use social media  i.e. Facebook, Twitter, Instagram please follow us @WeAreSCAUK and post during the day using:

#BeatingHeartsBeatingRecords
#CardiacaArrest

Don’t forget that we’d also love to see you at the “Celebration of Life” evening event at Ye Olde Plough House and you can  get tickets from Yapsody.

Venue

The event will be taking place as planned on the campus of Basildon Hospital but due to the numbers that have registered we have needed to move buildings.  We originally planned using the Essex CTC building but it will now take place at the Robert Brown Post Graduate Education Centre – just a few minutes walk away.

This has the advantage in that not only do we have more space but also better parking.

Car parking will be FREE for all attendees of the event.

Parking will be available adjacent to the Robert Brown building, including 3 disabled spaces.  Please follow the marshals who will direct you to the available spaces.

Emergency contact: 01268 524900 x4670

Main entry (left), GWR Event (right), Essex Cardiothoracic Centre (top), Parking (far right), Mutistorey (bottom middle)
Hospital address:
Basildon University Hospital
Nethermayne
Basildon
Essex
SS16 5NL
01268 524900 x4670

If you are using public transport, please use the Traveline website to plan your journey:

 

View larger map

 

Basildon Hospital is a smoke-free Trust

Smoking is not allowed in any hospital building or grounds.

Smokefree Logo Navy background

GWR

Evidence

As part of our submission for a Guinness World Record we must provide an evidence pack.  The pack consists of a number of things to show the record has taken place in the way we have stated and is in accordance with the rules stipulated by GWR.  Unfortunately no officials from GWR will be present on the day (this option is unfortunately well out of our budget).  This means that we must ensure that our evidence pack is the best it can be and will give GWR no doubt as to the validity of our attempt.

The evidence pack will require not only copies of your documentation but also lists of those attending, statements from officials and plenty of photographic and video evidence.  So, please be aware that we need to take lots of pictures throughout the day and especially of the actual attempt.  We must have some that have everyone participating in it.  To ensure we achieve this we will take pictures both indoors and outside.

Documents

Before leaving home please ensure you are bringing the ORIGINALS of the documents you submitted with your registration.  If you do not bring the same documents as the ones you registered with, we will need to scan them and this may cause a delay.  We have over 100 participants to process so would we would appreciate your assistance in making this part of the day as quick and smooth as possible.

If there is any doubt in your mind about the veracity of your documents please check with us first and/or bring official back up evidence.

For example, if you have changed your name since your cardiac arrest e.g. got married and you have different names on any of your documents bring a copy of your marriage certificate.

Or maybe your passport or driving licence is out of date?  If possible, renew it as soon as possible otherwise bring other official documents that support your identification. Ideally recognised photo cards or utility bills.

We will do our best to ensure that everyone one participating is included in the final count but that decision ultimately lays with GWR and so we must do everything to minimise any potential doubts in their minds.

At The Venue

On arrival at the venue please go to the registration room (A3/4) where you will need to check in.

Please have the ORIGINALS of your cardiac arrest evidence and identification documents ready to hand.

Check In

The check in will be open from 11:00am and the process will be undertaken by Doctor Matt O’Meara from Essex & Herts Air Ambulance and an assistant.  They will validate your documentation and if all is well you will be given a lanyard and your official GWR Attempt badge (with unique barcode).

Please put this on straight away and DON’T LOSE IT!

The Attempt

The record attempt will be taking place at 1:00pm in the main auditorium (KL) and all participants must ensure that they are seated at least 5 minutes before this time.

Participants should ONLY enter and exit through the appropriate marked doors and must ensure that their registration barcode is scanned by the official marshal. NB The barcode scanner is totally safe and will not affect any implanted devices i.e. ICD’s in any way.

The room has capacity for 120 seated and so we ask that only participants enter the room at the time of the attempt.  The only exception to this is for participants who require assistance from a carer/parent.

Please ensure you leave plenty of time to get to the attempt room and for the fact that you will have to have your barcode scanned in and we will have quite a few to do.

When all participants are in place we will start the attempt.  A presentation will be shown for the 10 minute during of the attempt.  Only participants staying for the whole of the duration will be counted for the attempt.  If for any reason you need to leave the auditorium during the attempt you will need to ensure that you leave by the designated exit and that your barcode is scanned.

Once the attempt and any photos are completed you will be allowed to exit the room.  This must be done through the allotted exit and as per entry you must get your barcode scanned.

Unfortunately we will not know on the day whether our attempt is successful as we have to submit our evidence to GWR for them to scrutinise and validate it.  That said, as long as everything goes to plan we should have no problems.

Important Times

11:00 – Check in opens

12:30 – Check in closes

12:55 – All participants must be seated in auditorium

13:00 – Record attempt starts, photos taken

13:10 – Record attempt ends, photos taken

13:15  – Participants start to exit auditorium

17:00 – 17:30 Group photo outside CTC building (short walk required)

Agenda

As well as the Guinness World Record attempt there are a host of other things going on!

Please note that due to space limitations some sessions will require booking. This can be done at the booking table in the main reception.

11:00 – Event and Exhibition open

11:00 – 12:30 – Check in

11:00 – Early and all day drop in sessions start i.e. First Aid, CPR+AED training

11:30 – CTC Tours start

12:30 – Lunch session 1, non-participant guests. See “Refreshments” tab

13:00 – 13:15 – Record attempt. See “GWR” tab

13:15 – Lunch session 2, participants. See “Refreshments” tab

13:50 – Welcome

14:00 – 17:00 – Main talks start

14:00 – 17:00 – Afternoon drop-in sessions start i.e. Physiologist (ICD’s), Counselling

17:00 – 17:30 Group photo outside CTC building (short walk required)

“Kevin Lafferty” Auditorium

Guinness World Record attempt
See the “GWR” tab for more information
All registered participants
13:00 – 13:15

Welcome
Dr Keeble welcomes all and sets the scene
Dr Tom Keeble
13:50 – 14:00

The following sessions are scheduled for an hour but will include a talk of 20-30 mins, Q&A and then time to mingle or move to your next session.

Life After Cardiac Arrest
Paul’s journey after his cardiac arrest and the story of SCA UK
Paul Swindell, Sudden Cardiac Arrest UK
14:00 – 15:00

Life After Brain Injury
Experiencing a cardiac arrest exposes the brain to the possibility of a brain injury.  Kevins talk will include the effects of an acquired brain injury on individuals, relatives/carers and some coping strategies; the effects of acquired brain injury under the headings of cognitive, physical and emotional difficulties which apply to people with a diagnosed brain injury; and the role of Headway Essex and their services, some of which will cover what other Headway groups offer elsewhere.
Kevin Maloney, Headway Essex
15:00 – 16:00

Community Public Accessible Defibrillators
SADS UK founder Anne Jolly talks about her charity and how it has been helping those affected by a cardiac arrest and it’s projects to promote life saving skills with CPR and AED training and placement of devices in the public domain. Dr William Toff will talk about his programme of introducing CPR+AED skills to all Leicestershire school children and his move to widen it’s coverage.
Anne Jolly MBE, SADS UK and Dr William Toff, Heartwize
16:00-17:00

Tours & Drop In Sessions

First Aid Training
A chance to brush up on some basic first aid to recognise and help with situations such as choking and fainting
St Johns Ambulance
Room B2
11:00 – 1400

CPR and AED Training
Short refresher sessions & a longer certificated session will be available to help you learn this vital life skill that many of todays guests would not be here without!
Heartwize, James Fenwick, Stuart Wright and LAS
Room A1
11:00 – 17:00

Essex Cardiothoracic Centre Cath lab tour
A chance to get to see what a cath lab is all about without the worry of being a patient!
Various
Essex Cardiothoracic Centre (a short walk away)
11:30, 14:00 and 15:00

Drop in Physiologist Q&A
Got any burning questions about your implanted device such as ICD or Pacemaker? James will have some devices on display and will only be too happy to answer any questions you have in his field of expertise.
James Young, Chief Cardiac Physiologist
Room B4
14:00-17:00

Drop in Counselling
If you feel you need a quiet space or someone to talk to
Neil Magee, Care After Cardiac Arrest Outreach Nurse
24hr Consultation Room
14:00 – 17:00

Repeated Sessions

The following sessions will be repeated at 14:00, 15:00, 16:00

Recovery from a cardiac arrest, a psychological perspective
Dr Mion gives an insight to the psychological struggles that survivors may experience based on his work with the Care After Resuscitation (CARE) study.
Dr Marco Mion, Clinical Psychologist
Room B3

“Right Here, Right Now” How Mindfulness can help you get your mojo back
A practical session on how to use mindful practice to live a more fruitful life. It will involve some mindful exercises and an introduction to the positive effects of meditation which can assist in returning to normal activity and quality of life following a cardiac arrest
James Whitfield, Psychotherapist
Room A3/4

Practical tips for good mental health
Mental health is a hot topic these days and cardiac arrest survivors can be especially vulnerable to issues.  This session aims to give some pointers to help you stay on track
Liz Sharpe, Therapist
Room B2

Speakers

In alphabetical order…

Anne Jolly MBE
SADS UK

Anne set up the Ashley Jolly SAD Trust, SADS UK after the sudden death of her previously healthy 16 year old son Ashley in 1998.  Her aims were to save lives in Ashley’s memory.  Her personal experience and qualifications in counselling help her to empathise and assist people who contact SADS UK who may have been bereaved, living with a cardiac condition, or whose lives have been impacted by suffering a sudden cardiac arrest. Anne has a background in
providing support, previously working at the Samaritans, YMCA and Mind. She has an advanced diploma in counselling and is a British Association for Counselling and Psychotherapy accredited counsellor. Anne is passionate about working with individuals, schools and the community and to date,
SADS UK has installed over 3000 defibrillators; lives have been saved as a direct result of the work of the charity. The SADS UK Big Shock Campaign lobbies Government to make defibrillators compulsory in all schools.
A very important part of Anne’s work with SADS UK is supporting research into sudden cardiac death and the charity is proud to be supporting and funding important studies at the Essex Cardiothoracic Centre state of the art hospital based in Basildon. Studies include an Out of Hospital Cardiac Arrest database application to set up a seamless database to document and improve Out of Hospital Cardiac Arrest (OOHCA) outcomes. The charity is also funding a neuro-psychologist at the Essex CTC to help improve access and neuro-psychological support for patients post OOHCA.  Anne was awarded an MBE in 2017 for her life-saving work and raising awareness of SADS.

 

Dr Tom Keeble
Consultant Cardiologist

I  am  a consultant cardiologist at Essex Cardiothoracic Centre and Southend Hospital and also conduct academic research at the Anglia Ruskin University.  I have an interest in coronary intervention, cardiology clinical trials and novel technology research.  I also run the Care After REsuscitation (CARE) programme which provides additional care post discharge for cardiac arrest survivors and their partners.

 

Kevin Maloney
Community Support & Development Coordinator, Headway Essex

I am a community support and development co-ordinator at Headway Essex since 2000. I have over 30 years’ experience of working in health, social services and the voluntary sector. My role is now focussed on supporting people living with the effects of acquired brain injury.

 


Dr Marco Mion PhD
Clinical Psychologist

I received my MSc in General and Experimental Psychology at the University of Milano-Bicocca (Italy) in 2005 – I then completed a PhD in Neuroscience at the University of Modena (Italy) in 2010, spending a year in the Department of Clinical Neuroscience at Addenbrooke’s Hospital (Cambridge, UK) as a Visiting PhD student. I have been working for the NHS since 2011 in different settings: memory services, hyper acute and acute stroke units and inpatient/community neuro-rehabilitation teams. I am currently working as a stroke and community neuropsychologist in central London, in addition to running a small pilot clinic for out of hospital cardiac arrest survivors and their family at the Cardio Thoracic Centre in Basildon. I have been involved with CARE (Care After Resuscitation) since 2016.

 

Liz Sharpe
Therapist at Live Your Life Therapies

I am a Counsellor, Hypnotherapist, Mental Health and Well-Being specialist, Psy TaP and BWRT® practitioner…. and I’m PASSIONATE  about all of it! With 20 years experience in supporting people, I use these therapies to help you resolve issues and difficulties in your life helping you  LIVE YOUR LIFE to the fullest.

 

Paul Swindell
Sudden Cardiac Arrest UK

Before my cardiac arrest in 2014 I worked in IT as a freelance software developer.  In May 2015, I set up Sudden Cardiac Arrest UK Facebook group after meeting a number of others affected by an SCA.  I spend time supporting the group and amongst other things have helped produce this website, the groups leaflet and ebook “Life After Cardiac Arrest”.  I have also assisted in the presentations of  Dr Keeble’s CARE study by giving a patients perspective on life after cardiac arrest.

 

Dr William Toff
Associate Professor in Cardiology

I am a Lecturer in Cardiology at the University of Leicester with an honorary clinical appointment at the University Hospitals of Leicester NHS Trust.  My main clinical and research interests are in the field of cardiac arrhythmia and implanted cardiac rhythm management devices. I have extensive experience of health technology assessment and cardiovascular clinical trials, and I served as founding Director of the Leicester Clinical Trials Unit (2009-2012).  I am the Chief Investigator for the NIHR HTA-funded United Kingdom Trans-catheter Aortic Valve Implantation (UK TAVI) trial and a member of the National TAVI Steering Group. My other interests include resuscitation science and the cardiovascular aspects of aviation medicine and fitness to fly.

 

James Whitfield
Psychotherapist

I am a highly specialised psychotherapist originally qualifying as a Nurse from the West Pennine College of health studies in 1994.  I have spent 20 years working with people with long term physical health needs. In 2014 I attained a Post Graduate Diploma in Cognitive and Behavioural Therapy from Anglia Ruskin University and in 2017 a Post Graduate certificate in Peer Supported Open Dialogue from London Southbank University. I work in Thurrock, Essex where my main interest is in improving the quality of life and psychological wellbeing in people with chronic and life limiting illness.

 

James Young
Chief Cardiac Physiologist

Having qualified in 2008 as a Cardiac Physiologist I have extensive knowledge and experience in invasive and non- invasive cardiology. My main areas of expertise involves the care and treatment of patients with electrical problems of the heart and I help run the electrophysiology service at the Essex CTC looking after patients with slow and fast heart rhythms. I regularly help teach and educate patients and staff locally, nationally and internationally.

Exhibition

Along some of the corridors will be a small exhibition of related organisations and sponsors.  They will be open from the start of the event.

SADS UK – Sudden Arrhythmic Death charity

HeadwayHeadway Essex (NB: until 3pm)

Wel Medical – Resuscitation equipment

Heartwize – Project to bring CPR/AED skills to schools

EHAAT – Air Ambulance service for Essex & Herts

Medtronic – Implant and other cardiac devices

Boston Scientific – Implant and other cardiac devices

Cardiac Science Corporation – AED’s and other cardiac devices

Abiomed – Cardiac products

Cardionovum – Cardiac products such as coronary balloons and stents

Laerdal – Cardiac products

Livanova/Micrport – Cardiac products

Zoll – Defibrillators

Abbot Vascular (formerly St Judes) – Cardiac implants

Refreshments

Available in the Social Area and Room B1

Light refreshments
Water, teas, coffee, biscuits etc will be available throughout the day

Lunch
Served from 12:30 but due to the numbers attending it will be split informally into two sessions.  Non-participants will be first and then participants will follow after their record attempt.

There should be enough for everyone but please be considerate to others who may be following later.