Q: Have you found “normal”?
Not yet accepted the ‘new’ as normal.
Mark, 56, 14 months
I feel pretty normal, but until I get genetic screening results, things could always change as I may or may not get a diagnosis.
Clare, 31, Almost 5 months.
It as took me nearly 7 years to get back to some semblance of normal I have to take things at a slower pace and realise my limitations.
Lisa, 40, 7 years
Don’t know yet. Too early to tell.
Joe, 52, 4 weeks
I was lucky got back to normal very quick.
Sue, 51, 8 months
Lost my personality
Anon, 70, 10 months
I am still not back to ‘normal’
Carly, 34, 1 month
Pat, 51, 15 months
I think I’ve found a new normal
Dawn, 48, 3 years
I have a new normal
Graeme, 36, 10 years
I actually found it easy to adjust. It was off to I’ve an ICD bit I didn’t struggle wth it. I was mpre forcused on recovery. You have to think of it as your new normal.
Amy, 17, 14 years
Stewart, 53, 3 years
i feel normal
Lynne, 47, 21 months
I did notice differences over a monthly period as the were so gradual. I would be able to say I couldn’t do this a month ago. I havent done that in some time so I guess the changes have stopped around at 12 months. But I do notice that its not getting better now but things seem to be getting worse. Eg my arthritis pains are back, I have my first cold since SCA
Robyn, 57, 18 months
Tracy, 50, 3 years
My new normal is no different to my old normal. I was able to take it all in my stride with the support of my family and friends.
Mark, 46, 23 years
It took a good 6 months and a further year for it not to be at the forefront of my mind. Now it’s just something that happened
Natasha, 25, 4.5 years
Anon, 36, 11 years
Life will never be normal again
Joanne, 48, 23 months
We now have a new normal and it took a while to get my head around that
Michelle, 50, 1 year
Certainly a ‘new’ normal. I will never be the person before, and to be honest, not sure I want to be. The ‘before’ me was a worrier, a little OCD, world on their sholuder’s type, had a stressful job, and somewhat annoying circle of friends. Since, the ‘new’ me, is so much more relaxed, I rarely plan things and just go with the flow, I work for myself and I purposely distance myself from negative people/friends. I keep calm as possible in challenging situations and look at the small things with different eyes, sunrise, sunset, birds singing, smell of rain, laughter….soppy I know, but these end up being so important and get missed so easily. I think the only possible negative things (if it is negative) is I have zero tolerance for other people’s minor ailments. I have never been a sick note kind of person, but now if I hear someone complain seriously about a cold or a headache which they feel they should attend A&E (drama queens) I can be very annoyed and feel disrespected. I guess it may be my own problem, not theirs.
Judy, 39, 3 years
Have learnt to adapt with life 90% of the time
Lee, 37, 5 1/2 years
Feel different to before but in a positive way, i am happy with life and as i am
Julie, 31, 8 years
Apart from walking I am fine
Maureen, 68, 7 years
I can’t reverse what has happened. I can, and have, accepted where I am now and who I am now.
Andy, 51, 5 years
Will never be the same
Michelle, 43, 5 years
Somedays I feel normal. Others I dont.
Lisa, 35, 4 months
Normal? Pink Floyd summed it up ‘There’s someone in my head and its not me’. The old me is gone.
Brenden, 56, 4 years
No I don’t think there will ever be a ‘normal’
Ben, 32, 1 year 2 months
i felt different but in a good way. I’ve always looked as what happened to me as a positive and it’s made me a much better person.
Imogen, 21, 2 years
Kym, 40, 3 years
Definitely us a new normal but you have to think you are alive and make the most of it
Anon, 56, 15 months