Are you a parent of an SCA survivor who was under the age of 18 when it happened?
In 2018, the Core Outcome Set for Cardiac Arrest in Adults (COSCA) was published to help cardiac arrest researchers know what outcomes should be used for future research studies. These were chosen with the input from families of cardiac arrest survivors, health care providers and researchers. This statement did not include children.
With the support of the International Liaison Committee on Resuscitation (ILCOR) and the American Heart Association, we are developing a Pediatric Core Outcomes Set After Cardiac Arrest (PCOSCA). The purpose of this is to find agreement between the parents or caretakers of children (< 18 years of age at the time of the cardiac arrest) who have survived a cardiac arrest, health care professionals and researchers on the important outcomes that should be included in cardiac arrest clinical trials for children.
Participating in this study involves completing 2 surveys. Each should take about 15-20 minutes. After completion of the first survey, in 4-6 weeks, you will receive a second survey that will also take 15-20 minutes to complete.
We will also ask you for information about your country of residence, the age of your child at the time of their cardiac arrest, how old they are now and your email address.
This information will remain confidential. As with any study involving collection of data, there is the possibility your confidential information will be shared with others. Every precaution will be taken to secure your personal information to ensure confidentiality.
There is no direct benefit to you as a participant in this survey.
By completing the questionnaire, you are indicating that you have had your questions answered, and you agree to take part in this research study.
Participation in this study is voluntary. If you decide not to take part or if you change your mind later there will be no penalties or loss of any benefits to which you are otherwise entitled. You can stop the questionnaire at any time.
Please complete the round by 12 noon on
We will be in touch again towards the middle of April with the results from this round, and the second questionnaire for your completion.
Thank you on behalf of the ILCOR PCOSCA Team
After our first meet-up in February 2015, I realised I was not alone. It was the first time since my cardiac arrest the previous year that I had spoken face-to-face with someone who had experienced what I had. This was also true for my wife, who also happened to be my lifesaver. From that meet-up, the idea of SCA UK was born. Since then, we have achieved a considerable amount, primarily providing information, resources and support to others in a similar situation but also raising the profile of survivorship and the need for better post-discharge care. We are starting to get traction in this, and with the formation of the charity, I genuinely believe we have a bright future ahead and will make a significant difference in the lives of many who join our ranks.