Who we are
Sudden Cardiac Arrest UK was started as a Facebook group in May 2015 by an SCA survivor after a meet-up of survivors and family members coming to terms with their recovery. The group is friendly, non-judgemental, empathic and aims to help its members in their recovery by providing answers to any questions they may have.
As well as the online support group there have been a number of group meet ups and activities. Meeting others who “get it” can be a real help on the path to recovery.
Why you might need us
You may feel like you have gone through one of the biggest events in your life and yet know very little about it. You are given your life back, but might find yourself unable to really live again and you might have no idea what to do next.
The health, psychological and practical issues of cardiac arrest survivors can include:
- Tiredness and Fatigue
- Neurological issues
- Cognitive and Memory problems
- Headaches and brain fog
- Lifestyle changes
- Work and financial considerations
- Inability to return to social activities
A wide range of subjects are discussed by the group’s members such as health and travel insurance, driving and the DVLA, implications of an ICD, physical and mental health issues, medications and survivor stories. Regular polls help give members an idea of where they are in their recovery and for many, simply having others to talk to who understand is a great relief.
Close family members, particularly those who might have helped save a life or been present when the arrest happened, can also experience post traumatic stress disorder (PTSD). They too will find support and advice from the group from others that have had similar experiences.