Q: What was your diagnosis?
What were you told that was the cause of your SCA?
Responses with name, age at SCA and time since
I have an ICD and have been diagnosed with Long QT Sydrome
Natasha, 25, 4.5 years
Heart attack due to Lesions. LAD & LCx
Mark, 56, 14 months
Joe, 52, 4 weeks
Carly, 34, 1 month
PEA SCA Extensive lung damage from extended artificial ventilation. Severe memory loss from length of time of sca. Both have had huge effect on everyday life.
Kym, 40, 3 years
Coronary Artery Disease – blockage to LAD and CX – 5 stents fitted . Life has changed -positive life changes , more active , more aware of health style and healthy eating. Negative- More anxious about doing things and for the future. Loss of confidence, panic attacks. Sad for loss of previous more carefree life. Live for today attitude.
Michelle, 50, 1 year
Degenerative heart failure, COPD, aphasia, and many other complications after 40 mins CPR.
Brenden, 56, 4 years
Michelle, 43, 5 years
I was diagnosed with Long QT Syndrome, things have changed but I subbornly try not to change too much now
Judy, 39, 3 years
Originally they thought heart block gr 2 but have changed it sick sinus node. Also have chronotrophic incompetence.
Anon, 56, 15 months
DCM & LBBB and my life is pretty much the same although I am more aware of what I eat and drink.
Lynne, 47, 21 months
Life previously was very much around work and not enjoying the things around me. I’m very much a believer in too much work and no play makes Ben have a SCA!!!
Ben, 32, 1 year 2 months
My life really hasn’t changed at all. I wasn’t diagnosed with anything so I love my life like I normally would.
Imogen, 21, 2 years
I have a Congenital heart defect. DORV trsnspostion, Pulmanary stenosis and VSD.
Amy, 17, 14 years
Amy, 30, 2 years and 8 months
Joanne, 48, 23 months
Ventricular fibrillation caused by failing mitral valve. The paramedics finally got a heartbeat after working on me for half an hour. I arrested 3 more times in the ambulance. Didn’t regain consciousness until the following day. Very lucky!
Mark, 46, 23 years
Lee, 37, 5 1/2 years
Diet change and less stress
Stewart, 53, 3 years
Currently undergoing genetic screening, but for now (and possibly forever) it is idiopathic ventricular fibrillation.
Clare, 31, Almost 5 months.
Idiopathic but essentially ‘ventricular tachycardia’
Anon, 36, 11 years
Tracy, 50, 3 years
Still not diagnosed. Tests still ongoing. I am waiting to see if I can continue in my job as a lone worker.
Lisa, 35, 4 months
Graeme, 36, 10 years
Heart valve replacement followed by SCA
Maureen, 68, 7 years
Dawn, 48, 3 years
Robyn, 57, 18 months
Cardiomyopathy originally and then, after the SCA, arrhythmias were spotted.ICD inserted. Two appropriate shocks later and two corresponding driving bans have slowed me down. Full-time work isn’t possible either. So, a major shift in living style, but it’s manageable.
Andy, 51, 5 years