Survivor Survey – Diagnosis

Q: What was your diagnosis?

What were you told that was the cause of your SCA?

Responses with name, age at SCA and time since

I have an ICD and have been diagnosed with Long QT Sydrome

Natasha,  25, 4.5 years

Heart attack due to Lesions. LAD & LCx

Mark,  56, 14 months

Still ongoing

Joe,  52, 4 weeks


Carly,  34, 1 month

PEA SCA Extensive lung damage from extended artificial ventilation. Severe memory loss from length of time of sca. Both have had huge effect on everyday life.

Kym,  40, 3 years

Coronary Artery Disease – blockage to LAD and CX – 5 stents fitted . Life has changed -positive life changes , more active , more aware of health style and healthy eating. Negative- More anxious about doing things and for the future. Loss of confidence, panic attacks. Sad for loss of previous more carefree life. Live for today attitude.

Michelle,  50, 1 year

Degenerative heart failure, COPD, aphasia, and many other complications after 40 mins CPR.

Brenden,  56, 4 years

Inherited cardiomyopathy

Michelle,  43, 5 years

I was diagnosed with Long QT Syndrome, things have changed but I subbornly try not to change too much now

Judy,  39, 3 years

Originally they thought heart block gr 2 but have changed it sick sinus node. Also have chronotrophic incompetence.

Anon,  56, 15 months

DCM & LBBB and my life is pretty much the same although I am more aware of what I eat and drink.

Lynne,  47, 21 months

Life previously was very much around work and not enjoying the things around me. I’m very much a believer in too much work and no play makes Ben have a SCA!!!

Ben,  32, 1 year 2 months

My life really hasn’t changed at all. I wasn’t diagnosed with anything so I love my life like I normally would.

Imogen,  21, 2 years

I have a Congenital heart defect. DORV trsnspostion, Pulmanary stenosis and VSD.

Amy,  17, 14 years


Amy,  30, 2 years and 8 months

Not known

Joanne,  48, 23 months

Ventricular fibrillation caused by failing mitral valve. The paramedics finally got a heartbeat after working on me for half an hour. I arrested 3 more times in the ambulance. Didn’t regain consciousness until the following day. Very lucky!

Mark,  46, 23 years

No diagnosis

Lee,  37, 5 1/2 years

Diet change and less stress

Stewart,  53, 3 years

Currently undergoing genetic screening, but for now (and possibly forever) it is idiopathic ventricular fibrillation.

Clare,  31, Almost 5 months.

Idiopathic but essentially ‘ventricular tachycardia’

Anon,  36, 11 years

Idiopathic SCA

Tracy,  50, 3 years

Still not diagnosed. Tests still ongoing. I am waiting to see if I can continue in my job as a lone worker.

Lisa,  35, 4 months

Idiopathic cardiomyopathy

Graeme,  36, 10 years

Heart valve replacement followed by SCA

Maureen,  68, 7 years

Heart attack

Dawn,  48, 3 years


Robyn,  57, 18 months

Cardiomyopathy originally and then, after the SCA, arrhythmias were spotted.ICD inserted. Two appropriate shocks later and two corresponding driving bans have slowed me down. Full-time work isn’t possible either. So, a major shift in living style, but it’s manageable.

Andy,  51, 5 years