Not Alone Seminar

It’s easy to feel alone and abandoned post-cardiac arrest and with this event we hope to banish that feeling!

As a cardiac arrest survivor you might not realise you are quite unique, survival rates are only 8% in the UK. There is a good chance that you’ve never met another survivor face to face, and this follows for partners, lifesavers and family of survivors.

Our events are one of the rare opportunities where you get to chat and interact with others who’ve been through a similar experience and “GET IT“.

The educational talks have been scheduled in hour-long sessions, with 2 talks per session. There is a break of at least 30 mins between each session for refreshments and mingling time.

If you use social media  i.e. Facebook, Twitter, Instagram please follow us @WeAreSCAUK and post during the day using:



Saturday 28th September, 2019


The Edith Weston Conference suite, Barnsdale Hall Hotel, Oakham

The majority of the daytime event will be held in the conference suite, just a few minutes walk from the hotel. There is a small incline between the two buildings and should anyone need it there is a golf buggy available for transport.

Heartwize and colleagues will be undertaking CPR+AED training sessions in the Empingham room, which is in a separate building near the main conference suite.


09:00 – Tea, coffee, pastries, mingle, exhibition

When you register you will be given a name tag with a coloured lanyard: Purple – Survivor, Blue – Family and Black for all others

Volunteer helpers from the Essex Cardiothoracic Centre will be around during the day to help you with any enquiries. They will be identifiable by their yellow t-shirts.

If wish to show your support for the event you can purchase t-shirts, hoodies and other goodies from the online shop.

There will be plenty of opportunities to talk to other delegates during the day and we encourage you to engage with others.


WhitwellFinding your mojo using Mindfulness
with James Whitfield
VariesWhitwellCounselling sessions
with Neil Magee
of the Cardiac Arrest Recovery team
EmpinghamLearn CPR/AED skills
with Heartwize

Main presentations will take place in the Langham room.

Session 1

10:0010:15Welcome with Paul Swindell
10:1510:30CARE – The Cardiac Arrest REcovery Team
with Dr Tom Keeble
10:3011:00The psychological aspect of survivorship
with Dr Marco Mion


11:00 – 11:30 – Tea, coffee, mingle, exhibition

Session 2

11:3012:00Memory issues and other sequelae
with Barbara Wilson

12:0012:30Coping with fatigue
with Donna Malley


12:30 – 13:45 Finger buffet, mingle, exhibition

Session 3

StartEndRoom 1
13:4514:15Putting AEDs into your community
with SADS UK & Charlotte Pickwick
14:1514:45Living an active life post SCA
with Angela Hartley


14:45 – 15:15 Tea, coffee, mingle, exhibition including raffle @ 15:00

Session 4

15:1515:30Global view of Cardiac Arrest recovery care
with Professor Karen Smith
Cardiology Q&A
15:3016:00Interventions e.g. stents, medications
with Dr John Davies
16:0016:30Electrophysiology e.g. arrhythmias, ICD’s
with Dr Andrew Grace
16:3018:00Afternoon tea and cake
We’ll split into separate moderated rooms for some
cake and informal chat amongst like minded
– Survivors
– Partners/family
– Health professionals/others

Please note we are still in the process of organising the speakers and sessions and so the above programme is subject to change.

Please see here for more information on the speakers


There will be a small exhibition of related organisations and sponsors.  They will be open from the start of the event.

SADS UK – Sudden Arrhythmic Death charity

Essex Cardiothoracic CentreCardiac physiologist Michelle Webster will be on hand to answer your questions about your ICD

Heartwize – Project to bring CPR/AED skills to schools

Out of Hospital Cardiac Arrest Registry – Dr Terry Brown from Warwick University

Oakham CFR’s – The local Community First Responders

Abbot Vascular (formerly St Judes) – Cardiac implants

Boston Scientific – Implant and other cardiac devices

Medtronic – Implant and other cardiac devices

LaerdalCardiac products

Astrazeneca – Pharmaceuticals

Stryker – Medical Technology

Becton Dickinson – Medical Technology

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