Are you a parent of an SCA survivor who was under the age of 18 when it happened?
If so, you could help influence what research is undertaken in this area by reading the following message from ILCOR PCOSCA Team and completing the referenced survey.
In 2018, the Core Outcome Set for Cardiac Arrest in Adults (COSCA) was published to help cardiac arrest researchers know what outcomes should be used for future research studies. These were chosen with the input from families of cardiac arrest survivors, health care providers and researchers. This statement did not include children.
With the support of the International Liaison Committee on Resuscitation (ILCOR) and the American Heart Association, we are developing a Pediatric Core Outcomes Set After Cardiac Arrest (PCOSCA). The purpose of this is to find agreement between the parents or caretakers of children (< 18 years of age at the time of the cardiac arrest) who have survived a cardiac arrest, health care professionals and researchers on the important outcomes that should be included in cardiac arrest clinical trials for children.
in this study involves completing 2 surveys. Each should take about 15-20 minutes.
After completion of the first survey, in 4-6 weeks, you will receive a second
survey that will also take 15-20 minutes to complete.
also ask you for information about your country of residence, the age of your
child at the time of their cardiac arrest, how old they are now and your email
information will remain confidential. As with any study involving collection of
data, there is the possibility your confidential information will be shared
with others. Every precaution will be taken to secure your personal information
to ensure confidentiality.
is no direct benefit to you as a participant in this survey.
completing the questionnaire, you are indicating that you have had your
questions answered, and you agree to take part in this research study.
in this study is voluntary. If you decide not to take part or if you change
your mind later there will be no penalties or loss of any benefits to which you
are otherwise entitled. You can stop the questionnaire at any time.
Please complete the round by 12 noon on Monday March 25th.
We will be in touch again towards the middle of April with the results from this round, and the second questionnaire for your completion.
Click here to start the survey
Thank you on behalf of the ILCOR PCOSCA Team