Managing Fatigue booklet just released

Our new cardiac arrest survivor booklet on Managing Fatigue after a Cardiac Arrest has just been released!

Donna Malley

We’re really proud of this booklet which has been written by our good friend and brain injury fatigue expert, Donna Malley. Donna is an Occupational Therapy Clinical Specialist and current Chair of the Royal College of Occupational Therapists Specialist Section Neurological Practice.

She has over 25 years’ experience working in the NHS and at the Oliver Zangwill Centre for Neuropsychological Rehabilitation where she developed her interest in fatigue. She has authored and co-authored a number of important publications regarding brain injury rehabilitation and fatigue and so is well placed to give advice on this subject.

The Booklet

Fatigue is clinically important, commonly misunderstood and the number one post-cardiac arrest sequelae that survivors report. This booklet aims to provide an overview of the current evidence base regarding factors contributing to persistent fatigue and the need for understanding an individual’s experience, the involvement of family and others, peer support and self-management.

The booklet talks about what fatigue is, why it occurs, how it affects survivor, how it can be managed and includes feedback from a survey that we recently undertook with over 200 survivors on their experience of fatigue.

Booklet contents

This is an essential read for all cardiac arrest survivors and their families and is packed full of useful information and advice such as the following…

Initially, the booklet is available as a PDF which is downloadable on this page. If there is a requirement we will look into getting print copies made.

Feedback

We’ve had some great feedback from last nights preview in the SCA UK Facebook group but we’d love to hear your thoughts on this important publication for the cardiac arrest community.

Excellent leaflet and applicable to so many of us

Dawn

This a great booklet. Fatigue definitely was never mentioned to me at the outset and it’s only comparing side effects with others that I’ve been able to understand how common it is. I’ve never actually put it down to the SCA myself so that’s interesting. Had always put it down to my heart condition/meds.

Janey

Excellent information and advice. I wish employers would take account of this

Jonathan

 just finished reading this and it coincides with everything I’ve learnt over the last year. So it makes me feel more relaxed about what I’ve learnt so far.

Richard

Design

A big thanks also goes out to Jo of Equalibrium Creative for her fantastic design work!

Equilibrium Creative Limited

More on fatigue is available here.

Survivorship Day Videos from #RESUS2020

The videos from the recent European Resuscitation Council (ERC) #RESUS2020 Survivorship Day are now available for all to watch, so if you couldn’t make the day, you’re in luck!

The day was divided into 3 sessions, each consisting of a short summary of a longer presentation and then a discussion/Q&A session. You can view each of these discussion sessions plus all of the videos the discussions relate to.

Please remember that the ERC #RESUS2020 is a primarily a professional conference targetted at physians interested in saving lives and these Survivors sessions were the first time that they had had this sort of content at their event. As such the aim of the sessions was to help out survivors directly but to also inform and educate those that can help future survivors and their families. So, please understand why some of the talks may seem a little more technical than we would have at a usual SCA UK event.

Session 1 – The Survivorship Story

Chaired by Dr Kelly Sawyer (US)

Moderated by Dr Katie Dainty (CAN), Sue Hampshire & Professor William Toff

With Dr Kirstie Haywood, Dr Tom Keeble, Stuart Menzies and Paul Swindell.

Discussio
Recording of the live discussion
Survivor
What’s it like to be a survivor – Paul Swindell
Lifesaver
What’s it like to be a rescuer – Stuart Menzies
Researcher
New normality (data drive outcomes/experiences) – Dr Kirstie Haywood
Doctor
What patient’s want and how can we make survivorship better – Dr Thomas Keeble

Session 2 – Survivorship Challenges

Physical and mental challenges, assessments and treatments for survivors and their families

Chaired by Professor Hans Friberg (SWE)

Moderated by Dr Marco Mion, Dr Gisella Lilja (SWE) & Dr Thomas Keeble

With Donna Malley, Professor Barbara Wilson, Dr Ros Case and Professor Karen Smith.

Discussion
Recording of the live discussion
Fatigue
Fatigue – Donna Malley
Memory
Cognitive
Cognitive and psychological assessment and treatments – Dr Rosalind Case
Wor
Return to work – Professor Karen Smith (AUS)

Session 3 – Global Survivorship Support

How to support survivors and families around the world

Chaired by Professor Karen Smith (AUS)

Moderated by Dr Benjamin Abella (US), Paul Swindell (UK) & Dr Kelly Sawyer (US)

With Dr Sachin Agarwal, Vicky Joshi and Dr Gisela Lilja

Discussio
Recording of the live discussion
New York + COVID
The New York model (4C) / Impact of COVID – Dr Sachin Agarwal
Denmark
Denmark – Dr Vicky Joshi
Sweden
Sweden – Gisella Lilja

DVLA FORM D1 – Temporary changes advice

A recent question was asked online regarding the correct procedure for gaining access to FORM D1 from the DVLA.  This is a key form which is required to be completed when re-applying for your Driver licence  (for a motorcycle or car) if you have voluntarily surrendered your licence e.g. post-cardiac arrest ICD implantation

A check of the DVLA site reveals that the facility to request a FORM D1 online , or to complete the application online has been temporarily withdrawn .

We have made contact with DVLA and have ascertained that this access facility has been withdrawn due to the current staffing model being deployed at DVLA in response to the COVID outbreak.

DVLA have advised that there are currently two ways to obtain a FORM D1

  • From your local Post Office

OR

  • Telephone 0300 790 6806, option 1  then option 3

It would be worth following the second choice as you can also request a FORM H1 (medical form) which you will also require to complete.

It should be noted that this process does not apply to FORM D2 (lorry, bus or minibus) which is still available to request or complete online.

Feature photo by Kelly Lacy from Pexels