Survivorship Day Videos from #RESUS2020

The videos from the recent European Resuscitation Council (ERC) #RESUS2020 Survivorship Day are now available for all to watch, so if you couldn’t make the day, you’re in luck!

The day was divided into 3 sessions, each consisting of a short summary of a longer presentation and then a discussion/Q&A session. You can view each of these discussion sessions plus all of the videos the discussions relate to.

Please remember that the ERC #RESUS2020 is a primarily a professional conference targetted at physians interested in saving lives and these Survivors sessions were the first time that they had had this sort of content at their event. As such the aim of the sessions was to help out survivors directly but to also inform and educate those that can help future survivors and their families. So, please understand why some of the talks may seem a little more technical than we would have at a usual SCA UK event.

Session 1 – The Survivorship Story

Chaired by Dr Kelly Sawyer (US)

Moderated by Dr Katie Dainty (CAN), Sue Hampshire & Professor William Toff

With Dr Kirstie Haywood, Dr Tom Keeble, Stuart Menzies and Paul Swindell.

Discussio
Recording of the live discussion
Survivor
What’s it like to be a survivor – Paul Swindell
Lifesaver
What’s it like to be a rescuer – Stuart Menzies
Researcher
New normality (data drive outcomes/experiences) – Dr Kirstie Haywood
Doctor
What patient’s want and how can we make survivorship better – Dr Thomas Keeble

Session 2 – Survivorship Challenges

Physical and mental challenges, assessments and treatments for survivors and their families

Chaired by Professor Hans Friberg (SWE)

Moderated by Dr Marco Mion, Dr Gisella Lilja (SWE) & Dr Thomas Keeble

With Donna Malley, Professor Barbara Wilson, Dr Ros Case and Professor Karen Smith.

Discussion
Recording of the live discussion
Fatigue
Fatigue – Donna Malley
Memory
Cognitive
Cognitive and psychological assessment and treatments – Dr Rosalind Case
Wor
Return to work – Professor Karen Smith (AUS)

Session 3 – Global Survivorship Support

How to support survivors and families around the world

Chaired by Professor Karen Smith (AUS)

Moderated by Dr Benjamin Abella (US), Paul Swindell (UK) & Dr Kelly Sawyer (US)

With Dr Sachin Agarwal, Vicky Joshi and Dr Gisela Lilja

Discussio
Recording of the live discussion
New York + COVID
The New York model (4C) / Impact of COVID – Dr Sachin Agarwal
Denmark
Denmark – Dr Vicky Joshi
Sweden
Sweden – Gisella Lilja

DVLA FORM D1 – Temporary changes advice

A recent question was asked online regarding the correct procedure for gaining access to FORM D1 from the DVLA.  This is a key form which is required to be completed when re-applying for your Driver licence  (for a motorcycle or car) if you have voluntarily surrendered your licence e.g. post-cardiac arrest ICD implantation

A check of the DVLA site reveals that the facility to request a FORM D1 online , or to complete the application online has been temporarily withdrawn .

We have made contact with DVLA and have ascertained that this access facility has been withdrawn due to the current staffing model being deployed at DVLA in response to the COVID outbreak.

DVLA have advised that there are currently two ways to obtain a FORM D1

  • From your local Post Office

OR

  • Telephone 0300 790 6806, option 1  then option 3

It would be worth following the second choice as you can also request a FORM H1 (medical form) which you will also require to complete.

It should be noted that this process does not apply to FORM D2 (lorry, bus or minibus) which is still available to request or complete online.

Feature photo by Kelly Lacy from Pexels

ERC Post Resus Guidelines Help

Being a survivor is a privilege, for the most part of human history, people like us have not previously existed. It was not until later part of the 20th century that science and medicine came together to be able to start saving cardiac arrest sufferers in substantial numbers.

In the late 1980’s a consensus for collaboration was growing amongst physicians and so in 1989 the European Resuscitation Committee (ERC) was created. In 1992 the International Liaison Committee on Resuscitation (ILCOR) was formed to take the message worldwide. These organisations exist to evolve the standards that were being implemented for CPR and the Chain of Survival and ultimately save more lives through resuscitation.

As well as bringing people together for events like the recent #RESUS2020 conference, the ERC also produces guidelines at intervals of approximately 5 years. They are accepted in most of Europe as the standard of care and the reference for clinical practice.

In essence, it is these guidelines that have shaped the health systems of Europe so that people like you and I can survive an event that would have previously ended up with an unhappy ending.

These guidelines are not perfect but are the best understanding of the science and knowledge that has credible evidence, and as such, it evolves as these do.

SCA UK was borne out of a meet-up in a pub in February 2015, which coincidentally was the same year the last guidelines were published. When we gathered in that pub, we were there as strangers but were pulled together because we all had essentially the same experience of what I now know as the Chain of Survival. The links of the chain were executed such that the survivors amongst us became that, survivors; and the partners, family members became life-savers. We have the guidelines to thank for that. However, it was a common theme that our experience since leaving the hospital was at some odds to the previous excellent pre-discharge care. 

It was through the formation of the SCA UK facebook support group that it became apparent that our experiences weren’t just isolated cases and that we had come together because we wanted a moan. There were numerous others going through many of the same ruminations and sequelae, and it seemed that there had been a common lack of focus on the last link in the Chain of Survival – “Restore quality of life”.

And so, 5 years on, the draft of the 2020 guidelines have just been revealed, and I believe for the first time in their 28 years, are open for public comment – which is where you come in

Whilst these guidelines are probably going to be too late to make a difference to you directly, you can pass on your luck and expertise of the “Life After Cardiac Arrest”. Feeding back from the perspective of someone who has that lived experience is invaluable to the professionals in helping them shape the future care of our peers. Let’s use this chance!

You can help by reading the relevant documentation and feeding back via the survey form. Time is tight though, as we only have until the 5th November 2020.

The guidelines are a hefty volume but helpfully the authors have broken it down separate documents focusing on various aspects of resuscitation. The Post-Resuscitation document is quite lengthy in itself and contains much that is perhaps best left to the professionals to comment on. However, it does contain a section on the “Long-term outcome after cardiac arrest”. This is very much of interest to us, as survivors, partners and families as this area of care are what has been somewhat lacking for many. 

I’ve extracted out the aforementioned long-term outcome section into a separate document for your ease of reading. 

However, you can download the full Post-Resuscitation document and the others that make up the guidelines for public comment from the CPR Guideline website

Please don’t forget to leave feedback via Survey Monkey, even if you agree with the contents.