From from a gathering of a few survivors and very important others, the group has grown impressively and now has many hundreds of members. Before joining the group many felt alone or abandoned as they were the only person they knew that had been through this life changing event.
Sudden Cardiac Arrest UK is a peer support organisation and the help, feedback and comaradery of the members has helped many understand what they are going through and how to re-establish life post SCA. Here are few of the nice things said about the group…
It allows me to see what others are experiencing and assists me
I’m a survivors husband. I carried out CPR on my wife. She is not a member of this group, she had an idiopathic SCA and has an ICD (one shock) and says she’s just not ready yet, but I am as it allows me to see what others are experiencing and assists me in dealing with what my wife went through whilst helping to support her in the process. I also benefit from sharing our experience with others in the group
I’m so glad this group exists I would be lost without it
I found this group after my SCA and have found the support & advice from fellow survivors and their families really helpful. Believe it or not surviving can be a lonely place and this group has helped me to know and feel like I’m not the only one. I’m so glad this group exists I would be lost without it
A place where living with the impact of a cardiac arrest is normal
From that day, whether consciously or subconsciously, family, friends, colleagues look at / treat you differently – understandably…. what this group has done for me and my partner is provide a place where living with the impact of a cardiac arrest is normal, there are no silly questions and in those days you just need to speak to someone who understands they are there
No question is ever too silly here
I found this group following my cardiac arrest in March 2016. I have found the group members encouraging on a day to day level due to being able to share my thoughts when I have questions. No question is ever too silly here and there is always someone to point the way to helpful solutions. I feel that through this group I have found people who understand the issues and challenges faced when I wondered if I would find anyone who understands.
This site has helped a lot
It isn’t the easiest of conditions to live with as there tends to be precious little support available from the medics once you have been discharged from hospital. This site has helped a lot, including allowing me the opportunity to directly ask a question of a cardiologist during an online webinar – brilliant.
So thankful to find this group and other people who ‘get it’
The hardest part of not dying is learning to live again! After 4 cardiac arrests, ‘normal’ changes, life changes, I’ve changed. I was so thankful to find this group and other people who ‘get it’. It’s been a priceless support and has helped me to understand the new ‘Me’.
A great source of information for me
The SCA group on Facebook has been a great source of information for me, but, more importantly, has been a way to meet other people who have suffered similarly with sudden cardiac arrest. There are post arrest physical and psychological problems that many of us suffer and it is reassuring to know that others have trodden the same path as you and are there to offer their advice and support.
Helps me through the bad days
I collapsed aged 33 with pulse of 276, had a cardiac arrest in A&E and spent 3 weeks in hospital, an ICD was fitted and I was diagnosed with ARVC. Have good days and bad, days but this group helps me through them by showing me I’m not alone and also I feel good when I’m able to help other sufferers through their bad times. I’m just thankful my 5 year old son hasn’t got the faulty gene, but he will still be monitored every 4 years which is reassuring
Made post-SCA recovery easier
Have met some wonderful people through this group. Made post-SCA recovery easier seeing others with the same questions I had
It is a special group
Good group its nice to talk and know there are others in the same boat,it is a special group.
Helped me to help my husband
It’s really helped me to help my husband. Thank you
Fantastic support network
Fantastic support network with genuine like minded people who are supporting one and other- really great work from the survivors themselves who run this
Help through a terrifying event
We have all been through a terrifying event, but this group helps us all to recover, at our own pace and knowing we are not alone
Great help in putting me in touch with others of a similar age
I was 24 when I had my SCA, and the group has been such a great help in putting me in touch with others of a similar age who’ve been through a similar experience
This group has been a lifeline to me
As a family we realised we were not alone. This group has been a lifeline to me as a mother of a 10 year old SCA survivor I needed to be strong for him, his siblings and keep the family together. On good days and bad days there is always someone willing to help you through and give support
Great mix of people in this group with help and advice
I found this group following my SCA in Feb 2017. I knew I would have lots of questions throughout my recovery, and its reassuring to know that there is a great mix of people in this group with help and advice available every single day. It’s also nice to be able to offer words of comfort and support to others. We all have off days, and no-one understands that better than us – we will help you through it.
Mutual support through sharing experience
A place to go to find other people who have, are and continue to experience life after a sudden cardiac arrest. You are not unique in feeling the despair of necessary dependence, the depression of a different and unsolicited lifestyle or the confusion over what to do or what not to do. Here is a large group of Sudden Cardiac Arrest Survivors and savers who mutually support each other by the sharing of experiences and outcomes in a constructive and compassionate manner
Gives me confidence that how I was feeling was normal
Hearing other people’s stories and giving me confidence that how I was feeling was normal. This I think allowed me to feel so much better much quicker than I thought would be possible
Amazing support after my SCA
This uk group has been an amazing support after my sca. A reveal device showed my heart kept stopping and I needed a pacemaker at the age of 29. In the middle of the operation I went into an asystolic cardiac arrest with a very slim chance of survival. I was lucky to have a team of cardiac surgeons there who performed CPR and saved my life that day, I will never be able to thank them enough for giving me a second chance. I am grateful for every new day and opportunity, this experience has made me a stronger person
Everyone is so supportive
I thank God that I found this group. It is so good to find people that just understand what you are going through because they have been there too. Everyone is so supportive and there is always someone there to listen or help with advice.
Dying, as it turns out, is easy. Surviving is a whole lot harder
Dying, as it turns out, is easy. Surviving is a whole lot harder, and when you need help to make sense of it all there is no better place to turn to than the incredible, supportive and often inspirational people in this group