Q: Have you found “normal”?
Somedays I feel normal. Others I dont.
Lisa, 35, 4 months
Don’t know yet. Too early to tell.
Joe, 52, 4 weeks
No I don’t think there will ever be a ‘normal’
Ben, 32, 1 year 2 months
Will never be the same
Michelle, 43, 5 years
I have a new normal
Graeme, 36, 10 years
I did notice differences over a monthly period as the were so gradual. I would be able to say I couldn’t do this a month ago. I havent done that in some time so I guess the changes have stopped around at 12 months. But I do notice that its not getting better now but things seem to be getting worse. Eg my arthritis pains are back, I have my first cold since SCA
Robyn, 57, 18 months
Not yet accepted the ‘new’ as normal.
Mark, 56, 14 months
Life will never be normal again
Joanne, 48, 23 months
I feel pretty normal, but until I get genetic screening results, things could always change as I may or may not get a diagnosis.
Clare, 31, Almost 5 months.
Definitely us a new normal but you have to think you are alive and make the most of it
Anon, 56, 15 months
It as took me nearly 7 years to get back to some semblance of normal I have to take things at a slower pace and realise my limitations.
Lisa, 40, 7 years
Kym, 40, 3 years
We now have a new normal and it took a while to get my head around that
Michelle, 50, 1 year
It took a good 6 months and a further year for it not to be at the forefront of my mind. Now it’s just something that happened
Natasha, 25, 4.5 years
My new normal is no different to my old normal. I was able to take it all in my stride with the support of my family and friends.
Mark, 46, 23 years
Stewart, 53, 3 years
I am still not back to ‘normal’
Carly, 34, 1 month
Lost my personality
Anon, 70, 10 months
i felt different but in a good way. I’ve always looked as what happened to me as a positive and it’s made me a much better person.
Imogen, 21, 2 years
Anon, 36, 11 years
i feel normal
Lynne, 47, 21 months
Apart from walking I am fine
Maureen, 68, 7 years
Feel different to before but in a positive way, i am happy with life and as i am
Julie, 31, 8 years
I was lucky got back to normal very quick.
Sue, 51, 8 months
Tracy, 50, 3 years
I can’t reverse what has happened. I can, and have, accepted where I am now and who I am now.
Andy, 51, 5 years
Pat, 51, 15 months
Normal? Pink Floyd summed it up ‘There’s someone in my head and its not me’. The old me is gone.
Brenden, 56, 4 years
Certainly a ‘new’ normal. I will never be the person before, and to be honest, not sure I want to be. The ‘before’ me was a worrier, a little OCD, world on their sholuder’s type, had a stressful job, and somewhat annoying circle of friends. Since, the ‘new’ me, is so much more relaxed, I rarely plan things and just go with the flow, I work for myself and I purposely distance myself from negative people/friends. I keep calm as possible in challenging situations and look at the small things with different eyes, sunrise, sunset, birds singing, smell of rain, laughter….soppy I know, but these end up being so important and get missed so easily. I think the only possible negative things (if it is negative) is I have zero tolerance for other people’s minor ailments. I have never been a sick note kind of person, but now if I hear someone complain seriously about a cold or a headache which they feel they should attend A&E (drama queens) I can be very annoyed and feel disrespected. I guess it may be my own problem, not theirs.
Judy, 39, 3 years
I actually found it easy to adjust. It was off to I’ve an ICD bit I didn’t struggle wth it. I was mpre forcused on recovery. You have to think of it as your new normal.
Amy, 17, 14 years
I think I’ve found a new normal
Dawn, 48, 3 years
Have learnt to adapt with life 90% of the time
Lee, 37, 5 1/2 years