Survivor Survey – Procedures

Q: What relevant medical procedures have happened?

What tests did you have, have you needed any operations/procedures or been referred to other specialists? See next question regarding any medical devices you might of received

Responses with name, age at SCA and time since

Many tests, the usual really, ECG, Angiogram, Echo, MRI, X Rays, Genetic Testing

Judy,  39, 3 years

None

Tracy,  50, 3 years

X ray, echocardiogram. Under the care of a cardiologist.

Andy,  51, 5 years

Genetic tests

Michelle,  43, 5 years

I had my Pulmanary valve replaced via OHS then an ICD fitted

Amy,  17, 14 years

I’ve had MRI scans in St Barts hospital in London but nothing was found to be wrong with my heart at all. I’ve only had an ICD fitted.

Imogen,  21, 2 years

24 hour ECG, Ajmaline challenge, exercise test, cardiac MRI, echocardiogram.

Clare,  31, Almost 5 months.

Normal tests post SCA

Stewart,  53, 3 years

Angiogram, angioplasty echocardiogram

Dawn,  48, 3 years

Electrophysiological study; eventual implant of ICD the next month. A further arrest at home 8 weeks later, treated by ICD; eventual prescription for a beta blocker later in the year. Some fine tuning of ICD, too.

Mark,  46, 23 years

Still ongoing

Joe,  52, 4 weeks

I had a Dye CT scan which I vaguely remember having in ER. I had an angiogram and echo. Lots of blood test in hospital. An ICD implant. Medications. Only folow is ICD clinic.

Robyn,  57, 18 months

On my third ICD, ventricular ablation etc.

Anon,  36, 11 years

Echocardiogram, MRI, Attempted abalation, but that was not the cause of the problem.

Lee,  37, 5 1/2 years

2 x Stents inserted

Mark,  56, 14 months

Found out that I had DCM, LVNC and LBBB

Lisa,  40, 7 years

Medication and stents as arrest was due to a heart attack

Pat,  51, 15 months

See my consultant yearly. Every 3 months my heart rate is downloaded from my monitor

Joanne,  48, 23 months

The full set!!

Graeme,  36, 10 years

I had an echo scan, MRI, brugada test, CT scan

Carly,  34, 1 month

Post SCA I had ajmaline test, MRI then ICD implanted.

Michelle,  42, 4 years

Cooled in ICU. Fitted with ICD. Ongoing tests for explaination.

Lisa,  35, 4 months

Kidney dialysis, respiratory consultant input since event. Had electrophysiologist before sca.

Kym,  40, 3 years

Tilt table. Couldnt have stress due to knee surgery. Ct scans and an mri.

Anon,  56, 15 months

ECG’s, echo’s, angiograms, x-ray

Lynne,  47, 21 months

I had a miss diagnosed heart mummer at 7 by 27 it was found by luck I had a coarctation of the aorta which unknown at the time lead to DCM and on one occasion last year thinking I was fit woke up in Papworth following SCA

Ben,  32, 1 year 2 months

I had two angioplasty operations. 5 stents fitted . Medications for life .

Michelle,  50, 1 year

Just routine follow ups

Maureen,  68, 7 years

Surgery not an option, three arteries blocked around the heart, have blood clotting problems and damaged lungs. Had evey test possible, tablets only to keep me going!

Brenden,  56, 4 years

Ablation procedure and ICD fitted immediately after event

Natasha,  25, 4.5 years